Patient Support

We the foundation members have created this page for all of you – fellow RPer’s, family members, friends, and rare disease and chronic illness sufferers alike – in our movement for awareness and continual education and support in helping to conquer this disease. Please visit our Facebook page, like it and share it. This is where you will find any news, updates from the foundation, information about all sorts of related Polychondritis issues, Foundation Questions Asked and Answered, and more. We encourage your feedback and active participation, as without you, our journey cannot continue moving forward.

Support Groups

Global Genes

Educational resources that provide critical information on various topics within the rare disease landscape, some of which include:
  • Parenting a Child With a Life-Limiting Illness
  • Genetic Testing: Is This My Path to a Diagnosis?
  • Using Storytelling to Raise Awareness For Your Rare Disease
All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice.If you think you may have a medical emergency, call your doctor or 911 immediately. The Relapsing Polychondritis Awareness and Support Foundation, Inc is a nonprofit 501(c)3 corporation. Donations are tax deductible as allowed by law.