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WAAD15 Is Here !!

 

REGISTRATION OPEN 600

Let’s get our awareness on! Join the Relapsing Polychondritis Awareness and Support Foundation by participating in World Autoimmune Arthritis Day (WAAD). WAAD is an annual event that happens RIGHT HERE on social media. Nonprofit groups will each have their own Official Race Team competing to take home the title of WAAD15 Grand Champion!

So how can you help?

First, visit www.worldautoimmunearthritisday.org and register before
May 15th. Our team will earn 25 virtual mileage points every time a supporter registers and selects Relapsing Polychondritis Awareness and Support Foundation as their Racing Team. You only need to answer a few basic questions, and choose Relapsing Polychondritis as your disease and the foundation as the race team you want to support. In addition to registering, you can earn extra miles by doing any or all of the following

1)liking the WAAD Facebook page
2)sharing each new WAAD FB post
3)retweeting and/or favoriting each new WAAD tweet.

New posts and tweets will be coming throughout the event so please check back often!

We also encourage everyone to share these posts on your personal FB pages and ask friends and family to participate. The more people we reach and get to register, the more virtual miles we receive! We may be small but we are a tough, tenacious group. Let’s show everyone that the Relapsing Polychondritis Awareness and Support Foundation is in it to win it!

Awakening the World to Our RP Challenges

 Coming Soon

The Relapsing Polychondritis Awareness and Support Foundation is proud to announce the coming of a long hoped for story of the challenges, disappointments, hopes and dreams of living of living a life with purpose while suffering from the rare disease Relapsing Polychondritis

Presenting:

“RP The Ride of My Life”

 

RP The Ride of My Life - Trailer

Click Here to Watch the Trailer

 

The Relapsing Polychondritis Awareness and Support Foundation (“RPASF”) is pleased to announce a gift to the Autoimmune and Rare Disease Communities in their entirety: a twenty minute professionally-produced video documentary titled “RP – The Ride of My Life”.

Above is the link to the trailer to this important video, which has been donated by a special RP friend (patient; survivor).

We encourage you to watch the trailer to get a glimpse of what RPASF believes will be a most helpful tool as we work to further our mission, including:

  • Advocating increased awareness and support for persons affected by RP; and
  • Educating the general public and medical communities about RP and rare diseases as a whole.

Soon, we will be able to share the entire video with you, your families and friends, doctors, researchers – and the wide world of rare disease and its advocacy.

We are planning an event to release the video, which we hope will be beneficial to not only you but your caregivers as well. Hopefully the perspective of RP and other rare diseases will change along with how our disease is seen by the world at large.

On behalf of RPASF, we thank Nancy who made this video available to us and salute her for her generosity and courage to share her RP story. For more information please contact Linda Vanthournout at lvanthournout@polychondritis.org

Please enjoy the trailer and envision a large, open door to lead us on our journey together to awaken the world!

Won’t you please help us achieve our purpose by making a donation now?



 

 

 

 

 

BRI Logo

Our latest Relapsing Polychondritis research update from Dr. Jane Buckner Associate Director, Benaroya Research Institute
Director, Translational Research-Benaroya Research Institute at Virginia Mason.

 

Read the latest research updates on Relapsing Polychondritis

Update on Relapsing Polychondritis Research at BRI 9-21-14

 

 


Or by Check to:

RPASF, Inc.
PO Box 369 Anoka, MN 55303

 

 

 RPASF, Inc. joins Amazon Smile and eBay Giving Works

 

You can now support the Relapsing Polychondritis Awareness and Support Foundation, Inc. at little or no cost to you by linking to us in their Charitable Giving Programs. Here’s how it works!

Share a Smile With Us on Amazon Smile

Amazon Smile Logo

  • Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the RPASF, Inc.
  • AmazonSmile is the same Amazon you know. Same products, same prices, same service.
  • Support the RPASF, Inc. by starting your shopping at smile.amazon.com

 

 

 

Partner up with us on eBay Giving Works

 

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eBay Giving Works
The combination of PayPal Giving Fund’s nonprofit expertise, plus eBay’s active global community, forms the eBay Giving Works program. It allows sellers to give proceeds from their sales to a favorite nonprofit, and helps nonprofits raise funds by selling on eBay too. Nonprofits can also receive donations on eBay through Donate Now which lets anyone with a PayPal account donate to nonprofits right away –without buying or selling anything.

 



 Or by Check to:

RPASF, Inc.

PO Box 369 Anoka, MN 55303

RPASF, Inc
Relapsing Polychondritis Brochures

 

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Download A FREE Copy Of Our Brochure Here

Download Here

File Type: Adobe Acrobat PDF
File Size: 10.084 MB
 
We will provide you with 3 printed brochures for free
by submitting your name and address to:
admin@polychondritis.org
 
 
 
 
 
 
All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice.If you think you may have a medical emergency, call your doctor or 911 immediately. The Relapsing Polychondritis Awareness and Support Foundation, Inc is a nonprofit 501(c)3 corporation. Donations are tax deductible as allowed by law.
 
 
 
 
 
 
 

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