Awakening the World to Our RP Challenges

 Coming Soon

The Relapsing Polychondritis Awareness and Support Foundation is proud to announce the coming of a long hoped for story of the challenges, disappointments, hopes and dreams of living a life with purpose while suffering from the rare disease Relapsing Polychondritis


“RP The Ride of My Life”

RP The Ride of My Life - Trailer

Click Here to Watch the Trailer

The Relapsing Polychondritis Awareness and Support Foundation (“RPASF”) is pleased to announce a gift to the Autoimmune and Rare Disease Communities in their entirety: a twenty minute professionally-produced video documentary titled “RP – The Ride of My Life”.

Above is the link to the trailer to this important video, which has been donated by a special RP friend (patient; survivor).

We encourage you to watch the trailer to get a glimpse of what RPASF believes will be a most helpful tool as we work to further our mission, including:

  • Advocating increased awareness and support for persons affected by RP; and
  • Educating the general public and medical communities about RP and rare diseases as a whole.

Soon, we will be able to share the entire video with you, your families and friends, doctors, researchers – and the wide world of rare disease and its advocacy.

We are planning an event to release the video, which we hope will be beneficial to not only you but your caregivers as well. Hopefully the perspective of RP and other rare diseases will change along with how our disease is seen by the world at large.

On behalf of RPASF, we thank Nancy who made this video available to us and salute her for her generosity and courage to share her RP story. For more information please contact Linda Vanthournout at lvanthournout@polychondritis.org

Please enjoy the trailer and envision a large, open door to lead us on our journey together to awaken the world!

Won’t you please help us achieve our purpose by making a donation now?






BRI Logo

Our latest Relapsing Polychondritis research update from Dr. Jane Buckner Associate Director, Benaroya Research Institute
Director, Translational Research-Benaroya Research Institute at Virginia Mason.

Read the latest research updates on Relapsing Polychondritis

Update on Relapsing Polychondritis Research at BRI 9-21-14

Or by Check to:

PO Box 369 Anoka, MN 55303

 RPASF, Inc. joins Amazon Smile and eBay Giving Works


You can now support the Relapsing Polychondritis Awareness and Support Foundation, Inc. at little or no cost to you by linking to us in their Charitable Giving Programs. Here’s how it works!

Share a Smile With Us on Amazon Smile

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  • Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the RPASF, Inc.
  • AmazonSmile is the same Amazon you know. Same products, same prices, same service.
  • Support the RPASF, Inc. by starting your shopping at smile.amazon.com

Partner up with us on eBay Giving Works


eBay Giving Works
The combination of PayPal Giving Fund’s nonprofit expertise, plus eBay’s active global community, forms the eBay Giving Works program. It allows sellers to give proceeds from their sales to a favorite nonprofit, and helps nonprofits raise funds by selling on eBay too. Nonprofits can also receive donations on eBay through Donate Now which lets anyone with a PayPal account donate to nonprofits right away –without buying or selling anything.

 Or by Check to:


PO Box 369 Anoka, MN 55303

Relapsing Polychondritis Brochures

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All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice.If you think you may have a medical emergency, call your doctor or 911 immediately. The Relapsing Polychondritis Awareness and Support Foundation, Inc is a nonprofit 501(c)3 corporation. Donations are tax deductible as allowed by law.

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