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Our latest Relapsing Polychondritis research update from Dr. Jane Buckner Associate Director, Benaroya Research Institute
Director, Translational Research-Benaroya Research Institute at Virginia Mason.


Read the latest research updates on Relapsing Polychondritis

Update on Relapsing Polychondritis Research at BRI 9-21-14



**RPASF has a New Logo**

RPASF is pleased to unveil our new logo! We really hope you like it as the work on our banner(s) is in progress and we’re excited about some of the concepts being discussed. A special thank you to those of you who have contributed to this project but for those who are still contemplating so, we are quite close but not there yet! If you wish to contribute click Donate below

Your Team @ RPASF

Or by Check to:

PO Box 369 Anoka, MN 55303


Making your Mark


If you or someone you care about suffers from RP, you have probably thought about what you could do to help the cause. So many of us would love to be more actively involved in the Relapsing Polychondritis Awareness and Support Foundation but don’t have the money to donate or the time to be a volunteer. Well, if you are still working, it’s possible that your company may have what is called a Charitable Giving Program.
One of our members, Sonja Riskey, works for AT&T. They have a charitable giving program called AT&T Pioneers and she is the 2nd VP for her local chapter in North Texas. Her fellow council members know she suffers from Relapsing Polychondritis so when Sonja approached them and asked if they would be willing to make a donation they were more than happy to do so. We are pleased to announce that because of Sonja’s willingness to simply ask for their help the RPASF, Inc. was the recipient of a $1,000.00 donation from TelcomPioneers Texas Pride Chapter #22!
There are thousands of corporations out there with similar programs just waiting for charities, especially ones that benefit their employees, to donate to. In fact, most of these donations are made at the request of their employees. Some companies may make cash donations, some may run incentive programs to raise money for a cause and others may do something as simple as setting up a table in the lobby or cafeteria asking for donations. Employers are often more than happy to help and in fact may have funds that they must use each year and are looking for ways to use those funds before they are lost. Getting involved with your companies charitable giving program can not only help our foundation, it can also be a great way to show your employer your willingness to become involved in helping the community as a whole and your desire to shine a positive light on your company.
So please, take a moment to look in to the programs that might be available at your company. Ask your HR department or supervisor if your company has a charitable giving program or participates in any type of charitable fundraising. Getting donations may be as easy as just asking and giving them our site information. Others, however; may require more information. No need to worry. We will provide you with all of the documentation you will need. All you have to do is contact us at admin@polychondritis.org with the details and we will get all of the necessary information to you right away.
This is a very exciting time for our foundation and receiving these types of donations is critical to our growth and therefore our ability to really make a difference. Please, take a few minutes to look in to what your company, or even your friends and family members’ companies, may have to offer. This could be your chance to leave your mark on the cause.
Thank you,
Your Team At
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 RPASF, Inc. joins Amazon Smile and eBay Giving Works


You can now support the Relapsing Polychondritis Awareness and Support Foundation, Inc. at little or no cost to you by linking to us in their Charitable Giving Programs. Here’s how it works!

Share a Smile With Us on Amazon Smile

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  • Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the RPASF, Inc.
  • AmazonSmile is the same Amazon you know. Same products, same prices, same service.
  • Support the RPASF, Inc. by starting your shopping at smile.amazon.com


Partner up with us on eBay Giving Works



eBay Giving Works
The combination of PayPal Giving Fund’s nonprofit expertise, plus eBay’s active global community, forms the eBay Giving Works program. It allows sellers to give proceeds from their sales to a favorite nonprofit, and helps nonprofits raise funds by selling on eBay too. Nonprofits can also receive donations on eBay through Donate Now which lets anyone with a PayPal account donate to nonprofits right away –without buying or selling anything.


 Or by Check to:


PO Box 369 Anoka, MN 55303






Check It Out
Our Latest Outreach Support Group

Pediatric Relapsing Polychondritis (Closed Group)


RP (Relapsing Polychondritis) is a rare, chronic, aggressive, incurable condition. It is thought to be an autoimmune disease, but it is also thought to begin in mid-adulthood. We KNOW that RP is NOT only a disease in adults. It is now known, especially by these members, to be diagnosed as early as infancy.
This group is designed for parents, family members and caregivers of CHILDREN with RP. We also welcome those whose child(ren) are now grown, but were diagnosed as a child. These very special families need each other for help, support, ideas, answers, advice and – of course- the very many questions.
We appreciate that you are here to help each other. As an outreach group of the Relapsing Polychondritis Awareness and Support Foundation (RPASF, Inc.), we also encourage you to visit and like our Facebook page at:



Relapsing Polychondritis Brochures


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All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice.If you think you may have a medical emergency, call your doctor or 911 immediately. The Relapsing Polychondritis Awareness and Support Foundation, Inc is a nonprofit 501(c)3 corporation. Donations are tax deductible as allowed by law.

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