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Give RARE

Give Rare Day is Live!!

 

And we’re off and running !!!!! WE’RE IN 15TH PLACE AFTER ONLY ONE HOUR!!!

Only one hour in and we’re already in 15th place overall on the leader board!!! That’s even including the BIG charities. WITH TENS OF THOUSANDS of dollars on the line don’t forget to share this post on your homepage to help spread Awareness and get the word out to your family and friends. You can join in and watch our status all day long at:

http://giverare.razoo.com/giving_events/gr14/home

OR if you or someone you know want to help you can donate right here.

Donate Now

Here’s what’s on the line!

 

  • Power Hours are from 11am-12 and 6-7pm EST – You could win $1,000 each hour
  • Top 3 Rare Champions with the most raised on a personal fundraising page will receive $4,000, $1,500 and $500 (Right now only $1,050 raised will win you a prize)
  • Community Awards of $1,500, $1,000 and $500 go to the non-profit with the most fundraising pages that raise at least $100.  So far WAGR, FMDSA and Noonan have 22, 15 and 13 respectively
  • Ultra-Rare – If you are ultra-rare you only need to raise $1,000 to qualify for a $3,000 draw
  • Diamond Fund – You need to raise $10,000 to qualify for a $7,500 draw (Only 2 non-profits qualify for this right now!!!)
So let’s go team RPASF go!

 

Pat Kish Memorial

Pat Kish

Our RP Community is mourning the loss of one of our own. Patricia Kish was a loving wife, mother, grandmother, great grandmother and friend, who passed away from a long battle with Relapsing Polychondritis on February 20, 2015. A long-time member of our support groups, Pat was always there for others with encouragement, advice and her deep-caring spirit. She rarely asked for help for herself, but rather gave freely of herself to make the journey of others who are afflicted with this devastating disease easier and feel better emotionally and spiritually, with her daily encouragement.
As an example of this, here is a quote from Patricia to one of our group members, “You just need time and if the pain is too great you can pray and hope and love anywhere.” We miss Patricia, but she will always be in our hearts.
Patricia’s family has kindly designated the Relapsing Polychondritis Awareness and Support Foundation as the recipient of memorial contributions in her honor and memory. If you wish to contribute to this worthy cause, please select Donate  or checks can be made out to “RPASF, Inc.” and mailed with a notation “In memory of Patricia Kish” to RPASF, Inc. P.O. Box 369, Anoka, MN 55303

Pat Kish Memorial

 

 

 

 

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World Rare Disease Day is just Around the Corner

 

World Rare Disease Day is an annual observance to raise awareness for rare diseases, and improve access to treatments and medical representation for individuals with rare diseases and their families. Created by European organization EUDORIS in 2008, this day is celebrated on the last day of February each year. The 8th annual World Rare Disease Day will be held on Saturday, February 28, 2015. On this day, various activities take place globally. This year we at RPASF ask you to participate in any way you can. There is a long list of potential activities you could participate in here at the Global Genes website http://globalgenes.org/get-involved-3/. Should you decide to do a fundraiser for RPASF any time that week, let us know at admin@polychondritis.org and we can help!

 

 

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Our latest Relapsing Polychondritis research update from Dr. Jane Buckner Associate Director, Benaroya Research Institute
Director, Translational Research-Benaroya Research Institute at Virginia Mason.

 

Read the latest research updates on Relapsing Polychondritis

Update on Relapsing Polychondritis Research at BRI 9-21-14

 

 



Or by Check to:

RPASF, Inc.
PO Box 369 Anoka, MN 55303

 

 

 RPASF, Inc. joins Amazon Smile and eBay Giving Works

 

You can now support the Relapsing Polychondritis Awareness and Support Foundation, Inc. at little or no cost to you by linking to us in their Charitable Giving Programs. Here’s how it works!

Share a Smile With Us on Amazon Smile

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  • Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the RPASF, Inc.
  • AmazonSmile is the same Amazon you know. Same products, same prices, same service.
  • Support the RPASF, Inc. by starting your shopping at smile.amazon.com

 

Partner up with us on eBay Giving Works

 

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eBay Giving Works
The combination of PayPal Giving Fund’s nonprofit expertise, plus eBay’s active global community, forms the eBay Giving Works program. It allows sellers to give proceeds from their sales to a favorite nonprofit, and helps nonprofits raise funds by selling on eBay too. Nonprofits can also receive donations on eBay through Donate Now which lets anyone with a PayPal account donate to nonprofits right away –without buying or selling anything.

 



 Or by Check to:

RPASF, Inc.

PO Box 369 Anoka, MN 55303

 

 

 

 

Pediatric

Check It Out
Our Latest Outreach Support Group

Pediatric Relapsing Polychondritis (Closed Group)


https://www.facebook.com/groups/352506518232793/

RP (Relapsing Polychondritis) is a rare, chronic, aggressive, incurable condition. It is thought to be an autoimmune disease, but it is also thought to begin in mid-adulthood. We KNOW that RP is NOT only a disease in adults. It is now known, especially by these members, to be diagnosed as early as infancy.
This group is designed for parents, family members and caregivers of CHILDREN with RP. We also welcome those whose child(ren) are now grown, but were diagnosed as a child. These very special families need each other for help, support, ideas, answers, advice and – of course- the very many questions.
We appreciate that you are here to help each other. As an outreach group of the Relapsing Polychondritis Awareness and Support Foundation (RPASF, Inc.), we also encourage you to visit and like our Facebook page at:

https://www.facebook.com/polychondritisawarenessandsupportfoundationinc

 Pediatric


RPASF, Inc
Relapsing Polychondritis Brochures

 

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Download A FREE Copy Of Our Brochure Here

Download Here

File Type: Adobe Acrobat PDF
File Size: 10.084 MB
 
We will provide you with 3 printed brochures for free
by submitting your name and address to:
admin@polychondritis.org
 
 
 
 
 
 
All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice.If you think you may have a medical emergency, call your doctor or 911 immediately. The Relapsing Polychondritis Awareness and Support Foundation, Inc is a nonprofit 501(c)3 corporation. Donations are tax deductible as allowed by law.
 
 
 
 
 
 
 

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Contact Us @ admin@polychondritis.org