skip to Main Content

RPASF Announces a New Program to Help Relapsing Polychondritis Patients Participate in a Research Study at the National Institutes of Health (NIH)

Greetings All,

RPASF is pleased to announce a new program at the Friends of Patients at the NIH (“Friends at NIH”), which will directly benefit relapsing polychondritis (“RP”) patients, their families and advance RP research at the NIH in Bethesda, Maryland.

By using the link below to donate directly to this new program, you will help those who cannot afford to participate in the relapsing polychondritis research: http://bit.ly/2tNQQN4

This Friends at NIH program is independent of RPASF and separate from Friends at NIH’s general donation account.  In other words, this program has been specifically designed to help RP patients and families and RPASF will not receive any portion of these donations.

As posted on RPASF’s website (www.polychondritis.org/current-updates/), the NIH is currently evaluating and testing patients with RP.

The Friends at NIH is a nonprofit organization that touches patients’ and their families’ lives by providing:

  • Shelter at or near the NIH during the evaluation and testing process;
  • Support systems including family and caregiver travel costs back and forth to the NIH; and
  • Quality of life to take some of the stresses off, like a meal when they arrive on Sunday to start a week of difficult evaluations and testing.

Thank you for your compassionate support of RP patients, their families and research.  It is greatly appreciated!

Tom Christie CEO
RPASF Inc.
tchristie@polychondritis.org

62

The Relapsing Polychondritis Awareness Support Foundation (RPASF) and the American
Autoimmune Related Disease Association (AARDA)
Walk & Fun Run

Ephram White Park
Bowling Green, Kentucky
Date: July 8, 2017
Time: 8:00 AM to 1:00 PM

Hi Everyone,
Do you know that when you sponsor a walker on our team, RPASF receives a share of that contribution? Also, when someone you know becomes a sponsor of the walk, our share is even larger.

That’s right!

For the past two years, we’ve partnered with AARDA on the Los Angeles Autoimmune Walks, which have raised a combined total of over $140,000 for autoimmune research. We’ve partnered with AARDA again for a brand-new Autoimmune Walk & Fun Run in Bowling Green, Kentucky on July 8th .

Why?

Because we believe that:

  • there is a common thread that ties all autoimmune diseases together and we want to help find it; and
  • when we link together, we are stronger!

We really need to support this new endeavor for the benefit of the relapsing polychondritis and autoimmune communities.

Please note that AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity. RPASF is one of AARDA’s big supporters and a partner on the Bowling Green Autoimmune Walk & Fun Run.

Please join our team!

You don’t have to be present to enroll as a teammate, you can be a virtual walker. It’s great fun getting your friends, family members, co-workers and neighbors involved in some good healthy competition for a great cause!

Whether you enroll yourself, donate to the team or even show your support and donation as a sponsor, we know we can guarantee at least one lap around the track for all of our supporters!

Thank you.

You have been waiting patiently and it is finally here!!

Our new shirt design, with exciting style and a new unique design! A great way to show pride and bring awareness and support to your Foundation. The theme of the shirt is “Follow Your Heart”, as we are all “Rare Beyond Compare”. Many sizes, child YS to adult XXXL and two colors to choose from for yourself and others. Start your Christmas shopping early this year! Share with your friends and family! You always know your money will be going to a great cause!! This campaign will be open until September 9th, so shop today!

Thanks Much,
Tom

Blue
pink



  or donate via mail to:

RPASF, Inc.
8843 78th St NW
Annandale, MN 55302

The National Institutes of Health (NIH) is interested in studying patients with Relapsing Polychondritis (RP)

Here’s our latest video of Kyle and the Marcelli Mob
showing the highlights from Virginia International Raceway.

Twilight Ride for RP sets records at Mazda Raceway Laguna Seca

Dr. Marcela Ferrada at Johns Hopkins University

Events

September 14-15, 2017: RARE Patient Advocacy Summit, Irvine, CA

November 3-8, 2017: American College of Rheumatology Annual Meeting, San Diego, CA

November 11, 2017: 3rd Annual Los Angeles Autoimmune Walk, Culver City, CA

May 18-23, 2018: American Thoracic Society 2018 International Conference, San Diego, CA 

Visit our Media Library

To receive a hardcopy of the brochure, please sent your request to admin@polychondritis.org.

Mailing Address

RPASF, Inc. , 8843 78th St NW,  Annandale, MN 55302

Back To Top