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Road Trip for RP Recap!

Road trip

Relapsing Polychondritis Awareness and Support Foundation, Inc.
Road Trip for RP Recap
 
Greetings,

It is my great pleasure to report that the Road Trip for RP was an outstanding success for everyone concerned. My journey with three great patient advocacy groups, RDLA, AARDA and Global Genes is done and was worth every minute of every session of every day.

In summary, to my surprise I found that all the advocacy groups are aligned together this coming year in three major categories. Those being Awareness, Patient Support and Research in that order. Call it an act of fate but those are the very three things we as a foundation stand for as defined in our Mission Statement. Simply put were are in the perfect place at the perfect time. I learned a great deal which will be of benefit to our organization as we continue to have tremendous growth. In fact I was congratulated by a PhD. Who after inquiring about us stated, “You did how much in how long!!” So it’s hats off to you our supporters who have brought us so far in such a short period of time. As a result of what I learned you will be seeing some subtle changes in the basic way we do thing but they will be all for the benefit of all of us moving forward.

I’d like to take this opportunity to thank those of you who donated either points or money to help make this possible, we could not have done it without you. I would also like to thank RDLA, AARDA, Global Genes, The Wingate Chantilly/Dulles Hotel in D.C. and the Wyndham Avenue of the Arts Hotel in Santa Anna Ca. for their assistance in making this dream a reality.

The link below gives a list of my activities for all three events on our website polychondritis.org I hope you’ll take the time to read it so you too can see and feel the excitement that I do.

Thank You All Once Again,

Tom Christie
Chair/CEO
RPASF, Inc.

On the Road for RP Recap (pdf)

 

Please show your support for Tom’s efforts on behalf of the Relapsing Polychondritis Awareness and Support Foundation by making a one time donation below.


Or By Mail At:

RPASF, Inc. P.O. Box 369 Anoka, MN 55303

 Summits and Meetings Sponsored By

Global Genes Logo

rdla logo

aardalogo

Accommodations Provided by

The Wingate Chantilly/Dulles, Chantilly VA

Wingate

The Wyndham Ave. of the Arts, Santa Anna, CA

Ave of the Arts

 

It is my honor and privilege as Chair/CEO of the RPASF, Inc. to make the following announcement!

RPASF, Inc. is now a 501(c)(3) – tax-exempt organization (public charity)!

 

The IRS has determined that we, RPASF, Inc. are exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Service Code. Also contributions to us are deductible under section 170 of the Code. We are also qualified to receive tax deductible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the code.

The Effective Date of Exemption is: March 16, 2013

This would have not been possible without the help, hopes and dreams of the following people. Board Member/Advisor – Carol Giordano, Board Member/Secr/Treas -Susan “Dale” Ross, Our Medical Advisor – Dr. Stanford Peng, Exec. Asst. – Amanda Feexico, Medical/Health Advisor – Dorothy “Dot” Droege, Health and Welfare Advisor – Guruatma Khalsa and our Advocate/Advisor for Northern Europe – Bianca Bras. Ladies, stand up and take a bow. I would also like to thank Joseph Levitt, Esq. of Davis Law Office, LLC for his help in this process.

Of course we know it’s because of you it’s become a reality. It’s because of the belief, support and generosity of our contributors and volunteers we have gotten this far. We shall forever be indebted to you for putting your faith in our cause and providing the motivation and finances to keep us moving forward.

We look forward now more than ever to pursuing our core belief that:

“There’s a Ray of Hope on Our Horizon”.

Warmest Regards,

Tom Christie

Chair/CEO RPASF, Inc.

tchristie@polychondritis.org

Our Document from the IRS (click to enlarge)

IRS Approval pg1IRS Approval pg2

Please Help us Achieve Our Goals by Donating Now!

Or by mail to:

RPASF, Inc. P.O. Box 369 Anoka, MN 55448

 


 

Pediatric

Check It Out
Our Latest Outreach Support Group

Pediatric Relapsing Polychondritis (Closed Group)


https://www.facebook.com/groups/352506518232793/

RP (Relapsing Polychondritis) is a rare, chronic, aggressive, incurable condition. It is thought to be an autoimmune disease, but it is also thought to begin in mid-adulthood. We KNOW that RP is NOT only a disease in adults. It is now known, especially by these members, to be diagnosed as early as infancy.
This group is designed for parents, family members and caregivers of CHILDREN with RP. We also welcome those whose child(ren) are now grown, but were diagnosed as a child. These very special families need each other for help, support, ideas, answers, advice and – of course- the very many questions.
We appreciate that you are here to help each other. As an outreach group of the Relapsing Polychondritis Awareness and Support Foundation (RPASF, Inc.), we also encourage you to visit and like our Facebook page at:

https://www.facebook.com/polychondritisawarenessandsupportfoundationinc

 Pediatric


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