RPASF Announces a New Program to Help Relapsing Polychondritis Patients Participate in a Research Study at the National Institutes of Health (NIH)

Greetings All,

RPASF is pleased to announce a new program at the Friends of Patients at the NIH (“Friends at NIH”), which will directly benefit relapsing polychondritis (“RP”) patients, their families and advance RP research at the NIH in Bethesda, Maryland.

By using the link below to donate directly to this new program, you will help those who cannot afford to participate in the relapsing polychondritis research: http://bit.ly/2tNQQN4

This Friends at NIH program is independent of RPASF and separate from Friends at NIH’s general donation account.  In other words, this program has been specifically designed to help RP patients and families and RPASF will not receive any portion of these donations.

As posted on RPASF’s website (www.polychondritis.org/nih-updates), the NIH is currently evaluating and testing patients with RP.

The Friends at NIH is a nonprofit organization that touches patients’ and their families’ lives by providing:

  • Shelter at or near the NIH during the evaluation and testing process;
  • Support systems including family and caregiver travel costs back and forth to the NIH; and
  • Quality of life to take some of the stresses off, like a meal when they arrive on Sunday to start a week of difficult evaluations and testing.

Thank you for your compassionate support of RP patients, their families and research.  It is greatly appreciated!

Tom Christie CEO
RPASF Inc.
tchristie@polychondritis.org

The Relapsing Polychondritis Awareness Support Foundation (RPASF) and the American
Autoimmune Related Disease Association (AARDA)
Walk & Fun Run

Ephram White Park
Bowling Green, Kentucky
Date: July 8, 2017
Time: 8:00 AM to 1:00 PM

Hi Everyone,
Do you know that when you sponsor a walker on our team, RPASF receives a share of that contribution? Also, when someone you know becomes a sponsor of the walk, our share is even larger.

That’s right!

For the past two years, we’ve partnered with AARDA on the Los Angeles Autoimmune Walks, which have raised a combined total of over $140,000 for autoimmune research. We’ve partnered with AARDA again for a brand-new Autoimmune Walk & Fun Run in Bowling Green, Kentucky on July 8th .

Why?

Because we believe that:

  • there is a common thread that ties all autoimmune diseases together and we want to help find it; and
  • when we link together, we are stronger!

We really need to support this new endeavor for the benefit of the relapsing polychondritis and autoimmune communities.

Please note that AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity. RPASF is one of AARDA’s big supporters and a partner on the Bowling Green Autoimmune Walk & Fun Run.

Please join our team!

You don’t have to be present to enroll as a teammate, you can be a virtual walker. It’s great fun getting your friends, family members, co-workers and neighbors involved in some good healthy competition for a great cause!

Whether you enroll yourself, donate to the team or even show your support and donation as a sponsor, we know we can guarantee at least one lap around the track for all of our supporters!

Thank you.

Twilight Ride for RP sets records at Mazda Raceway Laguna Seca

May 12, 2017 ride benefitting Relapsing Polychondritis Awareness and Support Foundation (RPASF)

As part of the 60th anniversary season of racing at Mazda Raceway Laguna Seca, the Ferrari Challenge returned to the world famous road course to kick off its 2017 season and to host the “Twilight Ride for RP”, which was a record-setting success!

Prior to the fast and furious launch of beautiful Italian “prancing horses” (Ferrari race cars), approximately 80 bicycle riders took to the track to raise over $25,000 for research on relapsing polychondritis or “RP”, which is a rare, and sometimes fatal, autoimmune disease characterized by recurrent widespread inflammation and damage of many body areas.  The autoimmunity attacks the patient’s cartilage, which is present inareas, including joints, eyes, ears, kidneys, and the airway.

Among the riders were Nancy & Neil, Andrea and Mike from the film titled “RP The Ride of My Life,” family and friends, including a number of accomplished race car drivers and team members.

With the outstanding support of the Ferrari Challenge, ScuderiaCorsa, and the event sponsors, professional race drivers Kyle Marcelli (a brand ambassador for RPASF) and Jeff Westphal demonstrated outstanding teamwork with Ann Bixler of Mazda Raceway, which enabled the riders to have a great time from the green flag to the checkered flag.

Thank you to all who supported this fantastic event, including the riders, donors, event planners, race teams, Mazda Raceway, and the generous sponsors who are highlighted at the end of the excellent event video (above) from Marcelli Motorsports.

We appreciate your support!

Tom Christie
CEO
RPASF, Inc




  or donate via mail to:

RPASF, Inc.
8843 78th St NW
Annandale, MN 55302

The National Institutes of Health (NIH) is interested in studying patients with Relapsing Polychondritis (RP)

Here’s our latest video of Kyle and the Marcelli Mob
showing the highlights from Virginia International Raceway.

Dr. Marcela Ferrada at Johns Hopkins University

Events

September 14 -15, 2017: RARE Patient Advocacy Summit, Irvine, CA

November 3-8, 2017: American College of Rheumatology Annual Meeting, San Diego, CA

November 18, 2017: 3rd Annual Los Angeles Autoimmune Walk, Culver City, CA

Visit our Media Library

To receive a hardcopy of the brochure, please sent your request to admin@polychondritis.org.

Mailing Address

RPASF, Inc. , 8843 78th St NW,  Annandale, MN 55302