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Awakening the World to Our RP Challenges

 Coming Soon

The Relapsing Polychondritis Awareness and Support Foundation is proud to announce the coming of a long hoped for story of the challenges, disappointments, hopes and dreams of living a life with purpose while suffering from the rare disease Relapsing Polychondritis

Presenting:

“RP The Ride of My Life”

RP The Ride of My Life - Trailer

Click Here to Watch the Trailer

The Relapsing Polychondritis Awareness and Support Foundation (“RPASF”) is pleased to announce a gift to the Autoimmune and Rare Disease Communities in their entirety: a twenty minute professionally-produced video documentary titled “RP – The Ride of My Life”.

Above is the link to the trailer to this important video, which has been donated by a special RP friend (patient; survivor).

We encourage you to watch the trailer to get a glimpse of what RPASF believes will be a most helpful tool as we work to further our mission, including:

  • Advocating increased awareness and support for persons affected by RP; and
  • Educating the general public and medical communities about RP and rare diseases as a whole.

Soon, we will be able to share the entire video with you, your families and friends, doctors, researchers – and the wide world of rare disease and its advocacy.

We are planning an event to release the video, which we hope will be beneficial to not only you but your caregivers as well. Hopefully the perspective of RP and other rare diseases will change along with how our disease is seen by the world at large.

On behalf of RPASF, we thank Nancy who made this video available to us and salute her for her generosity and courage to share her RP story. For more information please contact Linda Vanthournout at lvanthournout@polychondritis.org

Please enjoy the trailer and envision a large, open door to lead us on our journey together to awaken the world!

Won’t you please help us achieve our purpose by making a donation now?



 

 

 

 

 

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Our latest Relapsing Polychondritis research update from Dr. Jane Buckner Associate Director, Benaroya Research Institute
Director, Translational Research-Benaroya Research Institute at Virginia Mason.

Read the latest research updates on Relapsing Polychondritis

Update on Relapsing Polychondritis Research at BRI 9-21-14


Or by Check to:

RPASF, Inc.
PO Box 369 Anoka, MN 55303

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 Or by Check to:

RPASF, Inc.

PO Box 369 Anoka, MN 55303

RPASF, Inc
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