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Pediatric Relapsing Polychondritis (Closed Group)


https://www.facebook.com/groups/352506518232793/

RP (Relapsing Polychondritis) is a rare, chronic, aggressive, incurable condition. It is thought to be an autoimmune disease, but it is also thought to begin in mid-adulthood. We KNOW that RP is NOT only a disease in adults. It is now known, especially by these members, to be diagnosed as early as infancy.

This group is designed for parents, family members and caregivers of CHILDREN with RP. We also welcome those whose child(ren) are now grown, but were diagnosed as a child. These very special families need each other for help, support, ideas, answers, advice and – of course- the very many questions.

We appreciate that you are here to help each other. As an outreach group of the Relapsing Polychondritis Awareness and Support Foundation (RPASF, Inc.), we also encourage you to visit and like our facebook page at

https://www.facebook.com/polychondritisawarenessandsupportfoundationinc

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RPASF, Inc. announces the addition of Amanda Feexico to our organization.

AmandaPlease join the Relapsing Polychondritis Awareness and Support Foundation, Inc. in welcoming Amanda Feexico to our organization as Executive Assistant to the Board of Directors! As we grow Amanda will be assisting the board by acting as contact focal point and organizer as well as focusing on prospective donors and/or sponsors and any other duties the Board may require. She’s already well on her way to becoming a valuable asset to our group so please be sure to thank her for her commitment! afeexico@polychondritis.org

You can read her Bio Here
 
 

Summer is here and we’re kicking it off with the first of several promotions to come with something a lot of us do almost every summer!

 

It’s Time to “Rummage for RP”

 

rummage@polychondritis.org

 

Street Sign New Logo

 

Its summertime and everyone has rummage sales for different reasons, for extra money, to get rid of clutter and yes even for charity. Why not do it for all three?

The Relapsing Polychondritis Awareness and Support Foundation will assist you in having your own charity rummage sale.

Here’s What We’ll Do
  • Provide Brochures
  • Provide Art Work for Signs and Banners
  • Promote in Social Media and Sister Organizations
  • Provide Marketing Ideas Specifically for Charity Rummage Sales
  • Provide Freebies to Give Out (as available)
Here’s What You Will Do
  • Donate all or a percentage of the proceeds to RPASF, Inc.
  • Organize and implement the sale on the date you specify.
  • Provide a table for brochures, freebies and a donation jar.
  • Assist in marketing (Deduct Advertising Costs)
  • Print sings (Deduct Cost)
  • Work to get friends, family and others involved.

We will work with you one on one to ensure the best of sales and we’ll be providing awards for things like most proceeds and best presentation. We plan to run this until Labor Day so get started organizing now!

If you’re interested, let’s start things rolling by contacting us for further details at:

rummage@polychondritis.org

 

 

RPASF, Inc
Relapsing Polychondritis Brochures

 

Cover Image Small

 

 
 

 Download A FREE Copy Of Our Brochure Here

Download Here

File Type: Adobe Acrobat PDF
File Size: 10.084 MB
 
 
 
All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice.If you think you may have a medical emergency, call your doctor or 911 immediately.
 
 
 
 

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