The 3rd Annual Los Angeles Autoimmune Walk,
Saturday, November 11th 1:00 – 5:00pm
That’s right, it’s that time of year again, only this year it’s bigger and better than ever before! There will be three bands, food provided by Chef Mike from last year, who will be treating everyone this with his amazing culinary delights. There will be raffles, giveaways, along with fun and games for all!
This year we’re working to consolidate all the RP supporters into one team, simply named “For RP”. This is important since RPASF Inc, Your Foundation, is in partnership with AARDA for this walk. What that means is when you join our team or support a walker on our team, RPASF Inc receives 30% of the money raised by you. Also, we receive 50% of any RP originated sponsorships. This presents a great opportunity to consider your corporate matching opportunities! These funds help us continue to operate, along with helping us participate and spread awareness in meetings such as the International Meeting of the American College of Rheumatology, Rare Disease Day at the NIH and many others. We need your support in order to continue carrying on our successes and mission to which the foundation is now firmly rooted.
So, let’s all go and do what we can do to support Autoimmune research, while also supporting Your Foundation and the work we do by facilitating our projects. As always, we deeply appreciate your help and support!!
Due to popular demand we’ve re-opened
this record breaking T-Shirt promotion.
Our new shirt design, with exciting style and a new kicky design! A great way to show pride and bring awareness and support to your Foundation. The theme of the shirts is “Follow Your Heart” as we are all “Rare Beyond Compare.” Check out the posts on Facebook, everyone is amazed at the design. Take advantage of this Limited Edition while it lasts!
Attention Clinicians and Investigators
Did you know that we have over 375 Relapsing Polychondritis patients in the Autoimmune Research Network (ARNet) patient registry database. These are patient who have consented to participate in clinical and drug trials or any other research project you may be involved in.
The process is simple. Below is a link to the survey questionnaire, from there determine if there’s significant data elements to meet your inquiry needs. We will custom design queries which you may wish to pre-qualify candidates for further investigations.
If you wish, we can query over 17,000 patients across the entire registry across all autoimmune disease patients and provide you counts of patients who match your criteria, even where we can cross reference a list of all 100+ autoimmune diseases diagnosed by patient even to the level first degree relatives. Upon agreement, you will just allow that we contact the owners of the of the owners of the other data sets to see if their willing to participate. (Record charges may apply.)
With the American College of Rheumatology meeting coming the first week of November, until December 1st, 2017, we are offering FREE inquiries into the Relapsing Polychondritis database providing you the counts of how many patients match your criteria where we can go from there to meet your needs. Simply contact me:
Tom Christie CEO
or donate via mail to:
The National Institutes of Health (NIH) is interested in studying patients with Relapsing Polychondritis (RP)
Here’s our latest video of Kyle and the Marcelli Mob
showing the highlights from Virginia International Raceway.
Twilight Ride for RP sets records at Mazda Raceway Laguna Seca
Dr. Marcela Ferrada at Johns Hopkins University
September 14-15, 2017: RARE Patient Advocacy Summit, Irvine, CA
October 18, 2017: National Coalition of Autoimmune Patient Groups (NCAPG) Annual Meeting, Washington, D.C.
November 3-8, 2017: American College of Rheumatology Annual Meeting, San Diego, CA
November 11, 2017: 3rd Annual Los Angeles Autoimmune Walk, Culver City, CA
May 18-23, 2018: American Thoracic Society 2018 International Conference, San Diego, CA
RPASF, Inc. , 8843 78th St NW, Annandale, MN 55302